Sad News about baby Everest. His liver is failing. Both Everest and the family need urgent prayers.
From his mother:
Just had a visit with Everest. I was shocked to see he was very yellow/orange when I came in. The nurse said she was about to call me and let me know he’s having some issues being jaundiced today all of a sudden. She said it started last night/early morning and has progressively gotten worse with increasing bilirubin levels. They’re
repeating his ultrasounds, bloods tests & EKG to find out what’s going on and causing his liver to be so sick.
Obviously his heart function decreasing is causing his liver to struggle, they said it’s not super uncommon with really sick heart babies but concerning since he’s on the transplant list.
As of right now Dr. Garcia said it’s not bad enough she had to pull him from the transplant list. But he is throwing up all the feeds he’s being given in his NG tube (he gets breastmilk in a feeding tube that goes through his nose and into his stomach directly). They’re repeating his level testing a few times daily instead of weekly now and watching him VERY closely & if they aren’t able to get his liver function increased we may be in some trouble. If the liver function continues to make decreases, he will have to be pulled from the transplant list and that’s the end of the road for him. Can’t get a liver transplant with a failing heart & you can’t get a heart transplant with a failing liver.
Unfortunately there’s no cure or way to live without either of those. Please continue to pray for his liver function. We desperately need more time for him. If he can just hold on until a new heart comes
If you are able to donate, this is the link to securely do so, if not please just pray and share with others so they can pray and share as well. Having a medical savings for Everest is SO important and everyone who has helped has given us peace of mind and blessed us so much more than we could ever explain.